Tyyy!! And I hope yall raise enough money, it’s a good goal to have! 

First of all, best resource I can give you is The EDS Society, they’re UK based but they’re pretty consistently doing webinars and online support groups, they’re pretty damn instrumental in EDS advocacy.

Given that you say you’re a minor you’re probably gonna be in the ages transitioning between stages, and it’s gonna be rough ngl. 

hEDS has three major stages Hypermobility (Early Life), Pain (late teens to 40s) and Stiffness (40+) and the Hypermobility-Pain stage transition is gonna kick your ass, it’s okay. You’re gonna have to accept that it’s gonna set you back a bit, whether that be socially or physically or academically. I had to take four years off for it, but I did just get accepted by university and my shit’s on track now. You might fall behind your peers, but your peers will probably get a little fucked over by life too. There’s no one path for life.

Exercise is very good, just keep at it, a little exercise consistently is better than a lot of exercise intermittently. You’re trying to avoid deconditioning, not really getting gains. Weights isn’t as recommended, I got personally told not to do weights but I’m a little bit of an extremer case, if you can do low impact sports such as swimming that’s way more supportive.

Also training your proprioception and body map is very good to avoid hyperextention and injury. Stuff like Yoga and Tai Chi can be a double edged sword so you’ve gotta be really aware of your own tendencies to hyperextend and damage your body.

Check the list of comorbid conditions. EDS is a syndrome, it is a collection of symptoms and disorders, and ergo there is a lot of overlapping disorders. Gastrointestinal disorders, chiari malformation, mast cell activation, mitral valve prolapse, rheumatoid arthritis, etc, be aware of the symptoms just in case you do develop them.

Also you can have surgical intervention if you have problem joints, if you have quite consistent problem joints it’s not a bad idea to get them checked out specifically. I had really unstable knees, turns out my bones were a little underbaked, had hella Patella Alta, two surgeries and I don’t get total dislocations anymore in those joints, just occasional sublaxing. 

Solidarity, it’s like getting kicked in the head by the horse of delirium.

Ah tyyy!!!! Nb. Fgsggsgsgzg 

Yup! The winner was necogutz.

Take yer time!! 

Tyyyy!!!! Your Seal sona is super cute btw!! Awesome bangs!!!! (๑>◡<๑)

Np!!!! It was really fun!!

Tyyy!!! And don’t rush, go at a pace that’s good for you, I have too much time on my hands lmao

Thank youuuu for the trade!!!