so, starting last year, ive had intermittent issues with my legs. for three months (give or take) i was so weak i had to use a wheelchair, which sucked for obvious reasons. the start of in coincided with the start of school, so it's stress related. ive been weak on-&-off since, but haven't had to use the wheelchair. i had the weakness again a little bit when school started this year, but i was able to go about normally.

the leg weakness has since disappeared almost entirely so idk if it has anything to do with anything, but the reason i mention it is because i had all kinds of tests done to rule out things like lupus & multiple sclerosis, most notably a test specially to rule out autoimmune disorders, which came back clear.

now, i have nearly every symptom of postural orthostatic tachycardia syndrome (pots) & match the description of other patients almost exactly. the thing with pots is that it doesn't show up in any scans or blood tests, so i might have it but the only way to rule it out/get a diagnosis is to see a specialist, the soonest appointment of which is in six weeks. the specialist is a neurologist, which is great because ive also had some other deeply worrying symptoms...

for a long time, ive woken up to spasming of my arms & shoulders. usually it would only happen when i woke up, but it's been something that's happened occasionally for a very long time. last year around november i developed a tic that would make my right shoulder jerk upwards into the side of my head, which would sometimes tilt sideways to meet it. it only showed up when i was particularly stressed, & even then it didn't cause much concern at all because i thought it was just a little twitch.

for the past few months both shoulders have been seizing/spasming, my head jerks in random directions, my jaw drops open/clenches shut, & my lungs are forced empty. if i'm not doing something with my hands, it's back-to-back nonstop tics/spasms/seizes, starting on friday. before it was never this intense. in addition, ive had this awful brain fog that makes it almost impossible to focus or get anything done but that could easily just be part of pots if that's what i have, but idk about tics, especially ones as severe as this.

anyway, that's the short version of what's been going on. i'll use these bulletins as a way to document what's going on for the sake of you guys & my own shit memory. thanks for reading <3